Within the spring of 2005 after many journeys to three completely different GP’s and in desperation – nearly suicidal – I took on the duty for locating out what was unsuitable with me. I researched into potential situations, together with lichen planus. Once I learn a small paragraph of the signs in Dr Howard Glazer’s ‘The Vulvodynia Survivor’s Information’ it was as if a lightweight bulb lit in my head – I KNEW this was what was unsuitable. However my idea was dismissed by my GP as it’s normally solely itchy not painful (true for the non erosive variations of LP).
Nonetheless I used to be referred to a dermatologist and an oral specialist who each confirmed visually a analysis of vulval and oral (erosive) lichen planus and I began remedy at finish of July 2005 with excessive efficiency topical steroid and oral steroidal spray.
Time from onset of vulval signs to analysis and begin of remedy: 19 months.
Variety of GP’s seen: 3
Variety of consultants seen: 4
LP is life altering. Throughout a flare up, I can not sit down for lengthy with out ache, can not lie down for lengthy in a single place and have problem managing lengthy journeys. Intercourse is painful, carrying trousers typically inconceivable, cannot eat spicy, citric or scorching meals and many others.
This typically results in emotional misery and melancholy. The worst factor of all is the isolation. LP is a illness you, your loved ones and your folks have in all probability by no means heard of. You are feeling remoted and in ache. You ask the questions ‘why me’ and ‘what have I carried out to deserve this’. You shut out those you’re keen on, as a result of they do not – cannot perceive the ache you’re feeling. For this reason UKLP was arrange, to supply help to these residing with LP.
I’ve durations of flare ups and lengthy remissions from the signs, however I do know that LP will probably be with me for all times.
Supply by Bridie Nelson